Ok, Yes I know pretty strong words for a blog with the name Jesus and Dark Chocolate! But I have come to the conclusion that Early Onset Alzheimer’s pretty much sucks!
Today Curt and I got up early and ventured to Johns Hopkins Bayview Medical Center for an evaluation by a specialist there. We were greeted by a fun lady who is a Baltimore Raven fanatic, we had a great time chatting with her and almost got ourselves invited to her big football party tomorrow! I then quickly realized, the reason she loved Curt and I so much is because we were one of the youngest couples she has seen in her office! As a matter of fact the Dr. we saw, stated that Curt’s case is very unusual since “he is so young!”
I then asked how many other Early Onset patients he has seen in their 40’s.
He replied simply….”none…”
Curt then replied “then I must be really special”…..got to love the man’s humor amidst such serious words.
But those words did not sit well with me and neither did the memory testing Curt endured in the office.
Simple things like~ I am going to show you a pattern with my hands and then please do the same thing (think Rock, Paper,Scissors , Shoot type thing), or I am going to say 4 words and I want you to repeat them back to me in 1 min after you name as many animals as you can in 1 min, ( got to love Curt with this one, he named things like aardvark, muskrat, moose) or I tap my hand twice, you tap once, I tap once you tap twice ~
Curt struggled through all of these things! It was painful to watch and I could tell he was getting so frustrated!
It all drove home to me the horrors of this disease.
I have also come to realize in terms of the medical world there really isn’t a lot of hope for patients with Alzheimer’s.
Curt will get some further testing including an expensive blood test that is not covered by insurance, and a PET scan. Depending on the results he may be prescribed a new, cutting edge medical “food” that he can take. But aside from that there is little ongoing therapy, meds, or treatment for this dreaded disease. And I have a feeling the medical “food” is no prime rib, it sounded like some gaggy shake you drink once a day. I am guessing it does not come in Snickers flavor! 🙂
So as we found today our options are few….. a harsh reality!
But one bit of hope today was found in Curt’s own words…..“It is what it is, the Lord is in charge, God has a plan for ALL of this!”
2 Corinthians 4:16 ~Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day.
Ephesians 1:18 18 ~ I pray also that the eyes of your heart may be enlightened in order that you may know the hope to which he has called you, the riches of his glorious inheritance in the saints.
With Christ there is always hope, so I will not lose heart! 🙂
Thanks for praying for us today, your support has been so overwhelming dear friends!!
BTW, the picture at the top is of the two of us enjoying lunch together today after Hopkins.