Curt was chatting on the phone the other day with a friend, and I could hear him saying, “Dude, you got to get him on a solid team……….”
And there for a brief moment life seemed really normal. Curt was giving advice to a friend about baseball.
Friends would always call him and seek advice, wisdom, counsel etc on an array of things from sports to finances. But as I am slowly starting to realize, those moments are fleeting, and are fading into the black hole of Alzheimer’s.
In the last 2 months Curt has really struggled and has gone from bad to worse. I am painfully aware of his decline and am working to adjust.
So what have I noticed you may ask?
Overall he did pretty well with all this crazy traveling we had this summer, new hotels and a fast paced schedule were a lot for him to keep up with. He pretty much just followed me around and would conk out each night around 8:00. But the biggest problem came when we returned home after our first tournament in June from Myrtle Beach. Previous to the trip Curt was still doing a few household chores, he would take the trash out and load and unload the dishwasher. But when we returned home after being gone for 5 days those skills were completely lost! He had no clue how to do either one and really had no recollection that he had even done those chores on a regular basis. Along with those tasks went many of the other tasks he had grown accustomed to at home. He really can not check email or use facebook anymore, something he enjoyed up until the Myrtle Beach trip. He is now having great trouble trying to find anything to do at home. He mostly just sits in a chair all day, unless I find him things to do. This is a huge change, he is suddenly VERY DEPENDENT on me for so much these days. Getting himself dressed each day has become a chore along with several other personal hygiene issues. He also stumbles over his words and has great trouble getting out what he wants to say. And this may be one of the most disturbing things yet, as a long time, hard core Phillies Phan he has actually been watching the Pirates play baseball more this summer than the Phillies. Gasp!! :)
I knew these things were coming, I guess I just wasn’t prepared for it so quickly and suddenly!
He is also very tired during the day and has been going to bed around 8:00 this summer, which is so weird for my night owl husband.
The spatial issues of life continue to elude him also. Actually the best I can tell his spatial perceptions are totally gone, he can not write at all anymore, even lying down for bed at night he gets confused as to which end of the bed is the right place.
I like so many of you thought Alzheimer’s was just a memory problem, but as you can see it is SO much more then that!
So as summer wanes and turns to fall, I will be searching for someone to provide some kind of companion care for Curt during the day. I don’t feel comfortable with him being home alone the entire day while we are away at school. Who would have thought we would be at this place already?!?!
But I do cling to the fact that somehow God knew we would be, and He will continue to provide for us.
So do pray with us for a sports loving care giver for Curt during the days! :) Ok, well just pray for the right person. :) God has someone I know it. He has met our needs many times through such wonderful people, and I am learning more and more to trust that He will continue to do so. I just need a reminder every now and then about that, mostly in the middle of the night when I wake up worrying. :)