“The thing Margo told me about, is that here now?”
“The thing, you like it”
“Oh you mean the weekend?”
“Yes when does that start? We never had weekends when I grew up in Ohio so this is new”
“Yes it starts TODAY!!!”
So went the conversation between Curt and I this afternoon.
It reminded me of the good and bad of life these days. The good being the weekend, the bad the reminder of Curt’s progression with Alzheimer’s.
I feel like this school year has been a roller coaster ride filled with ups and downs, good and bad. The bad is the daily reminder of the progression of Alzheimer’s in Curt. He is having trouble finding certain rooms in the house now. He will say he is ready for bed and be so tired, but then ask, “where should I go?” He gets confused on where the bathroom is frequently. The anger of last spring is starting to rear it’s ugly head a bit also. In the last month or so, he would suddenly become so angry at me for random things. He was getting mad when I told him to take his shoes off so we could get his pajamas on for bed, he saw no reason to take his shoes off and thought I was being pushy telling him to take off his shoes first.
And the spatial concepts of life are totally gone, he is even having trouble being able to place himself in a chair with out assistance. Just today while out at a yard sale, Curt was saying he was losing his water. (He had been walking around yard sales with a water bottle). I looked over and he had been holding his water bottle at this angle not upright. He had NO idea that this was not the best way to hold a water bottle. It happens frequently….. darn spatial concepts!
Alzheimer’s is so much more then losing memories I am painfully finding out!
But there is some good in amidst the misery.
Tyler has been writing these beats on the computer with garage band, he and Curt are enjoying sharing some music time together just like they did in days gone by.
Madi turned 16….finally!! She got her driver’s permit and we enjoyed a nice morning together while a friend stayed with Curt on her birthday.
Tyler had a great baseball season….he won All League honors and ended the season with a .520 batting average, hitting 8 doubles, 5 triples and 3 home runs. It made for a fun season watching him play his senior year of high school baseball! It was such a joy especially after his broken ankle frustrations of basketball season.
I survived the spring sports season, there were moments when I questioned my sanity and ability to persevere. But I made it!!
Tyler and his sweet girlfriend enjoyed a nice night at Prom, and they looked so nice. Just another moment for this sentimental mom to cherish of a special time for my soon to be grad.
I started this post sometime in mid may and got caught up in the whirlwind of life and never finished it until today June 1st! Tyler’s baseball team made it into the post season so that kept baseball season going until late May, there were awards ceremonies, baseball banquets, laundry, (ok, the laundry never really gets done anymore, we just wash what we need for the week ahead, we all wear non matching socks these days. And we totally rock the look!), lacrosse practices for a team Madi is playing for this summer, a special 4 day visit from Curt’s parents. May just got so busy……and then there are those emotional mom moments when I ponder the fact that Tyler’ is graduating!!
Curt REALLY enjoyed his visit with his parents, they live deep in the depths of southern Texas and don’t get this way too often so it was indeed a wonderful time!
So alas I am finishing this post……I survived SPRING!!! Actually I am pretty happy to have gotten through all that craziness still intact, sure a few tears were shed in the process, but I pressed on! :) And I must give a big shout out to all the friends who continually walk this journey with us. Truly I would be lost with out all the help! Forgive me for not always thanking you personally or not at all, I feel certain that I forget to thank people at times….really I want to, intend to, but it all gets lost in that constant brain fog! But you are cherished and appreciated…….and really needed!
Friends just finished up Tyler’s senior collage for me…..just another example of the help we have gotten. And let me assure you, not in a million years could this craft/scrapbooking disabled mom ever have made anything look this good. Thanks to my sweet crafty and talented friends Cindi and Sherry!
Tyler graduates in 12 days, a big milestone. I am thankful for each of the milestones Curt can enjoy with us. And thankful that summer vacation starts for this weary mom on June 14th!
Thanks for your prayers friends!